They’ve been on the couch for 5 hours now….

If you need a bit of colour in your house, I’ve got a whole lot of new mix and match prints up on my website. It’s 10% off for any new subscribers. 🥰 If you’re not in Australia I have an Etsy shop so I can sell worldwide. 💖🧡💖

Best news!!! 🥹

Fuck I love her guts. www.theguardian.com/australia-ne...

Does anyone else spend ages trying to catch and move daddylonglegs from the bath before the cleaner comes?

Bishop Mariann Edgar Budde Hero.

Is ME/CFS the only illness where you can feel like you’re dying every day (for weeks, months, years) but there’s no point in seeing a Dr because even if they have heard of the illness they can’t do anything to help? #ME/CFS

Merry Christmas folks! I got one of the best presents a person with ME/CFS can get (apart from a cure or drs with knowledge) : 3 pages of coupons for labour! There’s always so much around the house I can’t manage by myself, so I’m stoked! #pwME #ME/CFS

The light in my kitchen blows me away every single afternoon. My teacher-bestie has started buying me a cat every time she goes away. Up to 3. I don’t go away any more due to good old ME/CFS making me housebound, so it’s special to get a present. #cats #me/cfs #midcentury

I got the flu vax today, not because I’m worried about getting the flu, but because the last time I got it, my baseline increased for at least 5 weeks. My smart watch noticed all my metrics were up, it was pretty incredible. It happens to a few people with ME/CFS but it’s not that common. #mecfs

Due to my ME/CFS I haven’t been able to paint, so I’ve been drawing my usual still lifes on the iPad instead. I was quite surprised to enjoy the process and the product so I turned my first 12 drawings into a calendar. #me/cfs #procreate #stilllifepainting #calendar #2025calendar

One of Millions Missing 2024 finds me disabled and exhausted with crippling fatigue from ME/CFS. I used to be bright and extroverted, with a colourful wardrobe, home, and art & design practice. Now, I’m fading. #millionsmissing #mecfs #oilpainting #chronicillness

My covid cautious and chronic illness friends will relate to this. It’s called ‘Staying upright in The New Normal’. Hand embroidery on digitally printed fabric. #covid #mecfs #chronicillness #embroidery #covidisntover

I rarely posted on Twitter because I’m a snowflake and get upset by trolls. Is it safe here to post this? Me in front of my artwork in the SICK AF exhibition recently. I’m wearing my ME/CFS back in bed tee. #SICKAF #mecfs #covidisntover

I keep seeing people with ME/CFS or long covid applying for assisted dying. We need better support and research so sick people have choices other than death.

Can’t believe this senator is immature enough to incite bullying of people wearing masks. Sucks to be high-risk when there’s knobs like this in parliament.

It’s been an interesting year. I never could have predicted that I’d be stranded with a flat tyre on my mobility scooter, or that I’d have a scooter at all. Earlier this year I was dancing. Now I’m housebound but with a scooter for work. How will I teach tomorrow with a flat tyre? #mecfs isn’t fun.