Sam Ⓥolchenboum
@volcs0.bsky.social
📤 793
📥 308
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Pediatric oncologist, informatician, Director of Data for the Common Good, vegan
pinned post!
@d4cg.bsky.social
is excited to be running a workshop with peds oncologists from all over India to democratize access to rare disease data through community building and data aggregation and harmonization. Thanks to the UChicago Delhi Ctr, Tata Mem. Hosp, Wadia Children's, Rajiv Ghandi Cancer Ctr
about 1 year ago
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The Children's Cancer Data Initiative symposium, scheduled for next week at the NCI, has been cancelled because of the shutdown. This is unfortunate. I was looking forward to hearing all the amazing progress made by so many working to leverage data for pediatric cancer research.
5 months ago
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Wow - this is awful and will affect a lot of project and studies. Please spread the word.
smartirb.org/stop-work-or...
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Stop Work Order for SMART IRB - SMART IRB | National IRB Reliance Initiative
Important Update: April 22, 2025On April 14, the NIH sent Harvard University a Stop Work Order for the SMART IRB federal funding contract. We were told to cease all work on the SMART IRB federal contr...
https://smartirb.org/stop-work-order-for-smart-irb/
10 months ago
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I want to get this amplified. One of my data engineers
@hhickman.bsky.social
y.social
part of my
@d4cg.bsky.social
team created this amazing tool to show the potential losses due to the change in indirect costs proposed by the current administration. It's shocking - please share.
sam.am/IDC
add a skeleton here at some point
about 1 year ago
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@d4cg.bsky.social
is excited to be running a workshop with peds oncologists from all over India to democratize access to rare disease data through community building and data aggregation and harmonization. Thanks to the UChicago Delhi Ctr, Tata Mem. Hosp, Wadia Children's, Rajiv Ghandi Cancer Ctr
about 1 year ago
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It is so exciting to be at the NCI today at the BSA committee meeting. While it wasn't "business as usual," it was very heartening to see most everyone excited about a solid future, where we can continue to improve cancer prevention, morbidity, and mortality.
about 1 year ago
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I am super excited about this new leadership role in my research group,
@d4cg.bsky.social
. Help build novel methods for getting patient data directly from the EHR. Please apply!
sam.am/PD2024
This will help our cancer survivorship work as well as other projects like our monogenic epilepsy commons.
about 1 year ago
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So much for the "crown jewel" status for the NIH. Putting these clowns in charge is not going to help anyone.
www.nytimes.com/2024/12/01/h...
Could anyone ever imagine a vaccine denier in charge of US healthcare? I can't think of a worse outcome.
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Long a ‘Crown Jewel’ of Government, N.I.H. Is Now a Target
The agency long benefited from broad bipartisan support. But Republican criticism has intensified, and new choices for top health posts hope to upend the organization.
https://www.nytimes.com/2024/12/01/health/nih-trump-kennedy-bhattacharya.html
about 1 year ago
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Tough bring the lone vegan on Thanksgiving....
#vegan
about 1 year ago
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We need to leverage new and innovative ways to get better clinical data. Check out this review by Kirk Wyatt and me.
@d4cg.bsky.social
add a skeleton here at some point
about 1 year ago
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Check out our Masters program offerings at University of Chicago -
programs.bsd.uchicago.edu
. Reach out if you want information on any of our programs. We are looking to train the next generation of leaders, and we offer concentrations in science communications, data science, and other fields.
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Biological Sciences Programs – Masters and certificate programs in biological sciences at UChicago
https://programs.bsd.uchicago.edu/
about 1 year ago
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When you get a piano from your landscaper, don't be surprised at the delivery mechanism.
#concordelandscaping
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over 1 year ago
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I love waking up and seeing our overnight visitors.
#Indiana
#trailcam
over 1 year ago
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Even when I was 8 years old, people were telling me to slow down. Side note: incredible to find out that Julian Solway and I had the same
#Skokie
piano teacher! Thanks Jane Hallenstein.
#piano
over 1 year ago
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Nacho wants up see what his big brother is eating. Thankfully, Rocco is very patient and gentle.
#greatdane
#kitten
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over 1 year ago
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Pro tip: Don't go to Costco on the Saturday before Thanksgiving. The checkout line stretched to the back of the store. The staff was amazing, but it was a madhouse.
#costco
over 1 year ago
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We at
@d4cg.bsky.social
had a wonderful webinar yesterday discussing our data commons work in rare diseases and our
@chanzuckerberg.bsky.social
monogenic epilepsy commons.
@fda.gov
commissioner Dr. Califf joined us for a fun discussion. Watch below and reach out if you want to get involved!
add a skeleton here at some point
over 1 year ago
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Rocco is not sure of his new bed mate...
over 1 year ago
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Look who was hiding in the wood pile.
#salamander
over 1 year ago
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Rocco and Rhoda - lazing around.
#greatdane
#australianshepherd
over 1 year ago
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