I wrote this article because I’ve seen what happens when lived experiences are ignored, and why it matters so much that they are listened to. Please share it to help those voices be heard. link.springer.com/article/10.1...

I see so many people trying to help others while they harm themselves. In my experience, the best way to help others is to help yourself first, and the best way to be compassionate to others is to be compassionate to yourself first

"Compassion, Hope, Empathy, Appreciation, and Patience are not expensive... Humanity is arguably the most important yet affordable resource... providers can afford to provide CHEAP care if they care enough..." Please read and share to raise awareness: link.springer.com/article/10.1...

I am still waiting for responses to 48 email requests made since 2024 for research articles that are not open access. Collectively, they would cost £1000s to purchase unless I were affiliated with an institution, in which case they would be free. This is not epistemic justice.

I'm not suggesting that there is a binary between scientific evidence and humanity, but let's not forget that every individual is unique.

Professionals love the term 'evidence-based', but what about 'humanity-based'?

Trying to find my way to somewhere or nowhere.

I miss seeing people happy. I miss seeing people eat normally. What has the world become. I have been reflecting a lot on the past, and the good memories are more painful than the bad memories.

Forced weight gain is not recovery.

It's difficult not to hate what the world is becoming.

Brutal honesty is sometimes needed, I think.

Memories of being connected to the world, or what the world was, are so very painful. It feels like being left behind. Everyone moves on. Everyone forgets. Loyalty doesn't exist except in words.

Depleted of words, yet full of thoughts. Where are they supposed to go?

Bone and muscle weigh more than fat, yet weight-loss drugs are advertised as 'fat jabs' / 'skinny jabs'. They are bone-loss jabs, height-loss jabs (as osteoporosis causes height loss), muscle-loss jabs, brain-loss jabs (as starvation causes brain atrophy), and much more...

It frightens me how many people on weight-loss drugs will end up with osteoporosis.

I wish it were possible to retire from daily living activities but not die.

I usually hide away in my shell like a tortoise, but it hurts when people ignore me on the brief occasions when I do come out. I've also noticed that people no longer encourage me out of my shell like they used to when I was young. Everyone moves on easily. Loyalty doesn't exist.

I both hate and love when my mind is racing.

Where is the loyalty.

My greatest fears about anorexia are long-term brain shrinkage and broken bones when I am older. Anorexia isn't just about weight loss and organ failure. It's about brain loss and bone loss and so much more.

“‘Obesity prevention’ can also be a pernicious form of ED promotion… Children are being nudged into disordered eating when they need to be prevented from developing disordered eating.” Please read and share the full article: link.springer.com/article/10.1...

I looked at some precious photos taken in the early 2000s, back in the Kodak camera days, before smartphones infected humanity. Painfully beautiful memories. I would die to live in that world.

I want to live in a forest. It would be less lonely than living in a town/city that is too scary to step into on my own.

'Quality improvement' of the NHS should be renamed to 'firefighting'.

I hate when my thoughts are rushing and I don't have enough time to write them down. I can't afford to lose them.

“Eating disorder (ED) sufferers are not to blame for their EDs, and they are not any less deserving of treatment resources than people with other illnesses.” Please read and share the full article: link.springer.com/article/10.1...

Thoughts are my most precious possessions.

Dear doctor, I’m afraid some truths are unprovable.

I have worked really hard on this comprehensive article, which makes recommendations for improving eating disorder care based on my lived experiences and peer research. Please read and help me share the link so that professionals/policymakers take action: link.springer.com/article/10.1...

A very moving report compiled by @dumpthescales.bsky.social - “An Inquiry into the Prevention of Eating Disorder Deaths” - has just been published in memory of Zara Taylor and other precious lives that have been lost to eating disorders: dumpthescales.org/_files/ugd/7...

I won't let anyone turn me into something I'm not because they don't like my authenticity.

I don't think it is possible for someone to be 'pro-anorexia' unless they are ill, so I feel a lot of sadness for them, even though I know that anorexia is a devastating illness that should not be promoted.

I never know when to stop.

Starvation causes more harm when you are young, while your bones and brain are still developing.

It's so sad that young people with eating disorders are talking about 'harm reduction'. Harm reduction causes much more harm when you are young, when your brains and bones are still developing. It's not supposed to be for people who have their lives ahead of them. 😢

"You keep on building the lies That you make up for all that you lack." - Sarah McLachlan

Looking away is irresponsible but intervening is impossible. My constant dilemma.

I wish people who hate me could tell me rather than leave me in uncertainty. Not knowing is worse.

"Don’t give up. There is a future for you. Do your best while you’re still on this beautiful Planet Earth that I look down upon from where I am now. God bless you all." - Dr Jane Goodall youtu.be/lfLKHY52ERc?... via @YouTube

People make it easy for someone to give up on themself when they have given up on them first.

I am guilty of trying to be a rescuer rather than a companion. Silent presence is impossible over social media, which kills the healing power of in-person contact, which I dearly miss. I need to learn to shut myself up and accept that I can't help virtually. I'm sorry.

The willingness to be present, to stay, to not leave – even when there is silence – speaks a lot louder and hears a lot clearer than words.

An empty life is just an existence.

I often wonder whether people who were supposed to care forgot about me accidentally due to their workloads or because I wasn’t worth remembering.

Treatment without compassion is not care.

When peer support leads to peer rejection --> 💔

Social media algorithms get vulnerable young people sucked into a world where being dangerously underweight is idealised 😥

I always ruin good things when I try to make them perfect. Good enough is never good enough.

Surviving for others is not true living. You deserve to live, not just survive.

Scientific evidence and treatment manuals are not needed when human connection is the best treatment.