I’ve been reliably informed that once you start looking for it, you begin to see orange everywhere! Orangetober has raised £998 today already and it’s only day one. Very grateful. More info on Orangetober (my October fundraiser) is here if you want to join in: www.jkrowbory.co.uk/2025/10/oran... 🧡🧡🧡

New blog post: Orangetober www.jkrowbory.co.uk/2025/10/oran... Would love for you to join in!

Orangetober: whenever you see something orange, photograph it & post it online, with a caption like this: I’m taking part in Orangetober. Whenever I see something orange this October, I’m taking a photo of it & asking you to consider donating to Jenny’s urgent neurosurgeries gofundme.com/savejenny

After listening to the Millennium trilogy by Stieg Larsson, I have some questions about Swedish culture. Can anyone help me out with the answers?! youtu.be/XfxTRpp16BE

In PMQs today, @joshnewburymp.bsky.social asked about EDS patients with neck instabilities who have to crowdfund surgeries abroad because there’s no help on the NHS for us. Mum has sent an email to him on my behalf to see if he can help. More info on my blog: www.jkrowbory.co.uk/2025/09/a-qu...

What I’m currently listening to: youtu.be/2X_s6adM0GA?... (Re-listening to the Mistborn audiobooks, also listening to the Swimming World Championships on Radio 5 Sports Extra)

WHOOP! #penalties

Sound on for the video below! Challenge: can you do this? I’d love to see videos of your attempts 😆 5years today since we set up the GoFundMe page for the neurosurgery. Doing really well but a way to go. Still hopeful. It’s a long time to be in a crisis situation though. gofundme.com/savejenny

‘A Summer Night of Poetry’ with me tonight: www.jkrowbory.co.uk/2025/07/a-su... The video will be available if you can’t make it at 7pm. All to fundraise for my neurosurgery. Please share!

Even if you don’t usually like poetry, I think that you might find something here to enjoy. Plus it’s raising money for urgently needed surgery. Win win!

Join me for ‘A Summer Night’s Dream of Poetry’ tonight, 7pm on Friday 18th July (though the video will be available afterwards if you can’t make it): www.jkrowbory.co.uk/2025/07/a-su...

Fast commentary on the 48 books I’ve listened to in 2025 so far, in 2½ minutes: youtube.com/shorts/AX-m0... What have been your favourite books of the year so far?

Summer Reading Challenge to raise funds for my neurosurgery. All ages can join in! Click here for more info: www.jkrowbory.co.uk/2025/06/summ...

New blog post: Thank you! www.jkrowbory.co.uk/2025/05/than...

A message from my Mum and also news that donations are going to be matched on the 29th and 30th April (up to the amount of £5000): www.jkrowbory.co.uk/2025/04/dona...

NEW BLOG POST: My Audiobook Adventures - giving my thoughts/reviews on a selection of some of the books that I’ve listened to this year: www.jkrowbory.co.uk/2025/04/my-a... #booksky #bookreview #books #audiobooks

I have written, read aloud and illustrated a new poem called ‘Resurrection Song’, which you can watch here on YouTube (it’s only 4½mins long!): youtu.be/X_Ce50LxkBE I hope that the poem will bring you light, as well as raising some money for my neurosurgery. Pls share. #poetrysky #poetry #poem

This video is my second ‘USA Challenge’ in my series of USA Challenges: youtu.be/Hs_QZ48KegM This time, the challenge is to list any differences between the USA and UK that you know, off the top of your head. I thought this was apt, since I am trying to get to the USA for neurosurgery. Pls share!

Speaking up about Welfare Cuts youtu.be/sZakhtBsN-E #politics #welfarecuts #disabilitybenefits #disability #health #UK

Can you beat my time? I rattle off the 50 states of the USA, off by heart, as fast as I can, for my new ‘USA Challenge’: youtu.be/gobFjcZn06M I thought it rather apt, since I am trying to get to the USA for neurosurgery, that my new fundraiser is ‘the USA Challenge’. Who can do it the fastest?

Reacting to ‘Onyx Storm’ by Rebecca Yarros as I listen along to the audiobook - hear my thoughts in my full video on YouTube here: youtu.be/05Voz7I1Lt0 #booksky If you enjoy the video, please consider going to GoFundMe.com/savejenny to see why I need urgent neurosurgery (unavailable in the U.K.)

Reacting to ‘Wind and Truth’ as I listen along to the audiobook - watch the full video on YouTube here: youtu.be/bHySKITbIew As part of my ‘Do Something You Love’ — Valentine’s Week Fundraiser for urgent neurosurgery — see my website for more info: www.jkrowbory.co.uk/2025/02/do-s...

I’m on my 10th day of a very nasty flu but am briefly attempting to squint through the flu haze and fever because I can’t miss posting my 2024 #audiblestats on the most exciting day of the year (Audible Stats Day)!

Wordle 1,290 1/6 🟩🟩🟩🟩🟩 I CAN’T BELIEVE IT! My starting word for Wordle that I have used all these years every day since the very beginning, is finally FINALLY the actual Wordle word! I never thought that this day would come. I CAN’T BELIEVE IT!!! 😮🎉😄🥹🥳

In my new blog post, I share some of my Christmas memories and traditions, as well as my favourite Christmas films and Christmas carols/songs at the end: www.jkrowbory.co.uk/2024/12/chri...

Video in which I try a peanut butter and jelly sandwich for the first time ever (I’m tasting this classic U.S. food because I’m trying to fundraise essential neurosurgery in the U.S.) Today is also 20years ago to the day when I first became ill at age 18 youtu.be/-Yq_tm89lhg

Seems as good a day as any to say you really must watch this amazing mini-documentary @jennyrowbory.bsky.social has made on what it’s like to live on a bed without being able to turn your head. Grows ever more compelling as it goes on. Urgent and important viewing.

@georgemonbiot.bsky.social Hi. I turned the camera on myself to show the realities of my life (bedpans and all!) with life-threatening neck instability & vascular compression due to EDS. I have severe ME too. Hoping to fundraise urgent neurosurgery in the US. Watch here: youtu.be/j09KuknjrXY?...

My Life With A Twist (and how to save it): youtu.be/j09KuknjrXY?... - a day in my life I explain why it’s becoming more urgent to get the neurosurgery that I need in New York