Thanks to Advocacy Day participants' efforts, Reps. Tim Moore and Don Davis have joined Reps. Doris Matsui & Adrian Smith to sponsor H.R. 8528, the PI Post Acute Access Act 🎉 It addresses #PICommunity barriers to receiving Ig replacement therapy in skilled nursing facilities: https://bit.ly/3PleJYX

In an op-ed for Real Clear Health, medical director Dr. Maria Paula Henao wrote about the serious consequences of vaccine policy disruption for immunocompromised Americans. Read it here: https://bit.ly/4ndReh4

Advocacy Day was a smashing success! Thank you to Representatives Moore, Massie, Hernández, Carter, and Knott for taking the time to meet our advocates personally.

Just a few highlights from the 110+ meetings we had today. Thank you to all our advocates and all of the offices we met with! If you haven't done it yet, you can still add your voice by sending an Action Alert: https://bit.ly/4ef3D1U.

We’re on Capitol Hill today representing the #PICommunity! Help us advocate for vaccine access and H.R. 8538, the PI Post Acute Care Act: www.votervoice.net/IDF/Campaign...

Help us prepare for Advocacy Day, #PICommunity! This year, we're advocating for strong federal vaccine policy and H.R. 8538, the PI Post Acute Access Act. Learn more and use our Action Alert system to tell your legislators why you support these priorities: https://bit.ly/423DKuE.

We support @idsainfo.bsky.social 's recommendation that all individuals ages 18+ who are #immunocompromised receive one dose of a respiratory syncytial virus (RSV) vaccine. Read our statement, then talk to your doctor: https://bit.ly/4vjT03I.

Last week, @fda.gov expanded approval for the #RSV vaccine Arexvy to those 18-49 years old at high risk, including people who are #immunocompromised. Check out this article on all the RSV prevention options: https://bit.ly/4sHRYwv.

Meet our new medical director, Dr. Paula Henao! Dr. Henao is an associate professor of allergy, asthma, and immunology at Penn State Health Milton S. Hershey Medical Center. Read more: https://bit.ly/4ryaFTa

Meet our 2025 Research Grant Program awardees: Drs. Eric Allenspach, Caroline Kuo, Ashley Lee, and Patrick O'Connell. They're taking on rare #PrimaryImmunodeficiencies to tease apart biology and develop treatments. https://bit.ly/45sRBwD