This article highlights the second phase of a sequential exploratory research study that identified what supports and services Canadian children living with disabilities/health conditions and their parents/caregivers need and want, now and into the future. 🔗 Read more: https://ow.ly/hky650YH5j7

This study examined the dynamic and bidirectional association between sleep quality, sleep duration, and mood in youth with CP. 🔗 Read more: https://ow.ly/z8tk50YFGX9

On April 1st, students, researchers, patient partners, and community members came together to celebrate innovation in child health, with over 500 attendees and nearly 200 research projects showcased at the McMaster Child Health Research Day 2026!🌟

This study aims at identifying and mapping the literature related to the MOVE programme and to describe its content according to preselected categories, focusing on individuals with non-ambulatory cerebral palsy. 🔗 Read more: https://www.mdpi.com/2227-9067/13/2/292

Persistent obstacles continue to limit equitable access to childcare services for children with disabilities. This study examines barriers to the accessibility of childcare services for children with disabilities aged 0 to 5  years in Canada. 🔗 Read more: https://ow.ly/qgYU50YClB3

This "What If..." Guide supports service providers in navigating challenging or sensitive situations such as family crisis, differing worldviews, or systemic barriers through compassionate, flexible strategies! 🔗 Click here to access: https://ow.ly/uVe050YBj3U

Drawing on the WHO’s International Classification of Functioning, Disability and Health (ICF), this editorial highlights a shift from earlier models of disability toward a framework that recognizes the interaction between biological, psychological, and social factors. 🔗 https://ow.ly/RTjc50YAPX2

This publication explores school-based health professionals' use of telehealth to deliver services for kindergarten to grade 12 students. 70 studies, were analyzed to identify what, where, when, why, how, and for whom telehealth services were provided. 🔗 Read more: https://ow.ly/LIGM50YzL0r

This study explored the 2-year impacts of the Family Engagement in Research (FER) Course on researchers’ and family members’ engagement in neurodevelopmental disability and child health research. ‪Family Engagement in Research Training Program‬ 🔗 Read the paper here: https://ow.ly/OKp950Yzcou

The purpose of this study is to describe the caregiver-reported frequency and type of sleep problems in children with spinal muscular atrophy (SMA) and to evaluate the sleep satisfaction of their child and their own sleep. 🔗 Read more: https://ow.ly/JpTj50YxEuE

Parents of children with EBD often struggle with their well-being. This study reviewed 13 articles on peer-led parenting programs. Findings indicate the potential for peer-led parenting interventions to have a positive impact on parent well-being. 🔗 Read more: https://ow.ly/fwBZ50YwRx6

We invite you to join an upcoming half-day virtual workshop hosted by CP-NET! 🌟 Come learn how research, community, and lived experience can help create more inclusive opportunities for physical activity 💚 🔗 Click here to register: https://canchild.mcmaster.ca/surveys/?s=E87R8EMPDLMLXYAT

The 17th Annual INRICH Workshop will gather researchers and partners in Hamilton (May 25–26, 2026) to connect local perspectives with international solutions. 🔗 Click here for registration and to learn more: https://ow.ly/7Q0v50YvhUB

The feasibility and effectiveness of a collaborative telehealth intervention were evaluated. Mean ratings for the Canadian Occupational Performance Measure and Goal Attainment Scale T-scores increased between baseline, post-intervention, and 12-week follow-up. 🔗 Read more: https://ow.ly/vXXz50YuLnl

This study explores the development of innovative knowledge translation (KT) practices within the Knowledge Translation Innovation Incubator (KTII) initiative, focusing on neurodevelopmental disabilities. 🔗 Read more: https://ow.ly/2O3p50YtyRh

The purpose of this study was to evaluate the feasibility and safety of a high-intensity physical rehabilitation programme for children and adolescents with acquired brain injury (ABI) during inpatient rehabilitation. 🔗 Read more: https://ow.ly/oFFR50Yt13R

This study aims to explore the impact of peer-support programs for autistic individuals. This review examines the impact of these programs on autistic individuals and identifies key challenges and facilitators that may influence outcomes. 🔗 Read the paper here: https://ow.ly/5lBs50YrQ2O

This article presents a critical review of standardized instruments used to assess mobility-related aspects in children and adolescents with Autism Spectrum Disorder (ASD). 🔗 Read more: https://ow.ly/aGjq50YqcWT

This study aimed to describe Canadian caregivers’ and clinicians’ language comprehension assessment experiences and needs for children with CP and SSPI prior to soliciting feedback to advance the C-BiLLT-CAN. 🔗 Read more: https://ow.ly/4ZGu50YpbIE

March is #CerebralPalsyAwarenessMonth 💚 This month lets raise awareness about cerebral palsy, its causes and symptoms, and the importance of research and support so individuals with CP can reach their full potential. Join us in raising awareness and go #Green4CP! #CPAM

This paper reports on the first two phases of a project to co-create and evaluate an “integrated” version of ENVISAGE, an online 5-week program designed for service providers and families of children with neurodevelopmental disabilities or concerns. 🔗 Read more: https://ow.ly/TuWS50YmC4N

This narrative review synthesizes evidence spanning multiple sports and gross motor function levels, where parasports demonstrate measurable benefits across all domains of the International Classification of Functioning, Disability and Health. 🔗 Read more: https://ow.ly/AO4k50YmBHa

This Viewpoint provides examples of how health professionals and systems can expand their interest beyond impairment-focused care to partner with families, adopt practices that promote children's perspectives, and create disability-inclusive environments. 🔗 Read more: https://ow.ly/umN950YmAM0

This study aims to describe autonomy levels and explore factors associated with participation autonomy in Brazilian young people with cerebral palsy. 🔗 Read more: https://ow.ly/hOHa50YhmHM

The purpose of this study was to explore the diagnostic journeys of caregivers of children with Down Syndrome diagnosed with Autism Spectrum Disorder, including identifying the challenges and needs of families, the barriers, and how ASD symptomology presents. 🔗 Read more: https://ow.ly/oalI50Yhley

The purpose of this study was to develop an updated Measure of Processes of Care assessing parent/caregiver perceptions of the family-centredness of service providers’ behaviour. 🔗 Read more: https://ow.ly/E3X350Yhm0J

To facilitate targeted interventions for parental burnout, this study sought to explore both risk and protective factors associated with burnout as perceived by parents of children with complex care needs. 🔗 Read more: https://ow.ly/LSiq50YgJU5

This scoping review aimed to identify outcomes and associated methods for evaluating interprofessional collaboration or interdisciplinary clinical training in pediatric rehabilitation. 🔗 Read more: https://ow.ly/7I5L50Yervz

This study describes current approaches to contracture management among Dutch pediatric rehabilitation physicians caring for children with SMA receiving DMT, and explores considerations and clinical reasoning that inform their decisions on contracture management Read more: https://ow.ly/sthK50Yfbwy

This multimethod process evaluation aimed to explore the implementation of a telehealth coaching intervention for parents of children with motor difficulties, involving 59 parents and four therapists. 🔗 Read more: https://ow.ly/wFPN50XWqK4

This study validates the Italian version of the Child Epilepsy Quality of Life Questionnaire (CHEQOL-25), including both the child self-report and parent-proxy versions, through a validation procedure involving 252 children with epilepsy and their parents. 🔗 Read more: https://ow.ly/fsNR50XWquS

The first six cohorts of the FER Course (2018–2021) were part of a pre-post evaluation to assess learners’ perceptions and satisfaction of the FER Course, and the impact on their perceived knowledge, abilities, attitudes, and self-confidence in FER. 🔗 Read more: https://ow.ly/nLMQ50XWqmN

This essay highlights contributing factors that are likely to exacerbate the climate crisis for individuals with neurodisabilities and provides recommendations for how to recognize and seize opportunities to confront the ever-growing threats of climate change. 🔗 Read more: https://ow.ly/FkZv50XWpBE

School-based occupational therapy (SBOT) is moving from pull-out interventions toward tiered models emphasizing inclusion and participation. This study aimed to explore perceived ethical challenges occupational therapists experienced during this transition. 🔗 Read more: https://ow.ly/2j7T50XWpn9

We're recruiting Youth Advisors! Want to share your ideas and help shape research on child engagement in therapy? Work with a research team, build skills, and make sure youth voices are heard. Interested? Reach out!

This study examines the longitudinal course of joint range of motion in young children with spinal muscular atrophy (SMA) receiving disease-modifying treatment. 🔗 Read more: https://ow.ly/LMWP50XWp8c

This paper explores how social communication interventions for autistic children and youth map onto the domains of the International Classification of Functioning, Disability and Health in the field of speech-language pathology. 🔗 Read more: https://ow.ly/LTVm50XWnKb

This study investigates the relationship between parent-reported physical activity levels and mobility performance in children with Down syndrome. 🔗 Read more: https://ow.ly/3SqL50XWnxJ

This research explores barriers that adult stakeholders perceive towards inclusion of children with disabilities in ‘playing together’ with peers with and without disabilities. 🔗 Read more: https://ow.ly/RFau50XWn9i

The study evaluates the effectiveness of a single ankle-worn activity monitor (AM-p) in accurately assessing "stationary" and "locomotion" behaviours in children who use manual wheelchairs. 🔗 Read more: https://ow.ly/aX2j50XWmOL

Limited guidance exists for researchers wanting to use photovoice to engage children with neurodevelopmental disorders (NDDs), 0-25 years, and their caregivers in health research. This mixed-methods systematic review synthesized photovoice research with this population. 🔗 https://ow.ly/AMry50XWmAH

Join us on Thurs. Jan. 15th at 12 EST for a conversation with Dr. Peter Rosenbaum who will describe how the F-words framework is increasingly used with families to support well-being. 🔗 Register online at https://ow.ly/QShU50XW9wX

Transition from pediatric to adult care represents a great challenge for patients and their families, and especially for patients with Duchenne Muscular Dystrophy. This review examines the transition experience of patients and their families. 🔗 Read more: https://ow.ly/tnb650XVEyJ

This study aimed to evaluate the effectiveness of repeated botulinum neurotoxin A (BoNT-A) injections on gross motor function over 3 years in ambulant children with spastic cerebral palsy (CP). 🔗 Read more: https://ow.ly/yBCO50XT1JI

This study aimed to assess children’s vocabulary, grammar, communicative participation, and phonology skills targeted during the virtual parent-implemented Target Word language intervention for children aged 16 to 27 months who were late-to-talk. 🔗 Read more: https://ow.ly/U0fw50XSEq7

The CanChild family wishes you a happy and joyous New Year! Thank you for being a part of our community and supporting our mission. Here's to another year of making a difference together for children with disabilities, their families, and caregivers. Cheers!🌟

The aim of this study was to explore facilitators and barriers perceived by Dutch children with and without disabilities (6–12 years), in regular and special primary education, for participating in inclusive outdoor play. 🔗 Read more: https://ow.ly/W5MW50XNUIx

Dynamic Movement Intervention (DMI) and Cuevas Medek Exercises (CME) are promoted as innovative neurorehabilitation methods for children with neurological disabilities, yet rely on outdated reflex-hierarchical models rather than contemporary motor learning principles. 🔗 https://ow.ly/f2p450XNUF0

As a part of the European Network of Youth Cancer Survivors project, evidence-based recommendations were developed to address transition challenges to improve healthcare transitions to long-term survivorship, ensuring continuity and addressing survivors’ unique needs. 🔗 https://ow.ly/lb7P50XNOPj

To examine the most significant consequences from a patient perspective, this questionnaire study explored the strengths and difficulties in daily functioning after perinatal brain injury, by child self-report and parent-proxy report. 🔗 Read more: https://ow.ly/TVaZ50XLFWt