This study aimed to understand how equity-based co-creation (EqCC) is enacted in health and social services and what outcomes are produced using a multiple case study methodology to explore four sites conducting EqCC projects. 🔗 Read more: https://ow.ly/qH2l50Z4Keb

This paper reports the 30-year history of engagement between CanChild Centre for Childhood-Onset Disability Research and families of children with neurodisabilities. 🔗 Read the publication here: https://ow.ly/rVcb50Z1NfU

This study aimed to examine parents’ experiences with healthcare services for their children with disabilities using the newly updated MPOC 2.0 questionnaire. 🔗 Read more https://ow.ly/3hjr50Z1MOV 👉 Learn more about MPOC 2.0: https://ow.ly/bau950Z1MOU

COVID-19 profoundly altered daily life and key milestones during the transition to adulthood for Canadian youth with special healthcare needs. The study highlights the need for flexible health, education and community services that accommodate diverse needs. 🔗 Read more: https://ow.ly/wHHy50Z1LFi

This study used the About My Child tool to describe and compare areas of concern reported by caregivers of children and adolescents with Down syndrome across different developmental stages. 🔗 Read more: https://ow.ly/LePX50Z1IV7 👉 Learn about the About My Child tool: https://ow.ly/pZ2X50Z1IV8

This scoping review explored factors that influence the real-world implementation of family-focused programmes for early childhood development. Findings highlight the importance of early assessment of contextual factors to improve implementation efforts. 🔗 Read more: https://ow.ly/gy7150YZAx8

This qualitative study, conducted in Brazil, used Interpretative Phenomenological Analysis to explore the pandemic experiences of 27 participants — including people with disabilities, caregivers, therapists, and teachers — through semi-structured interviews. 🔗 Read more: https://ow.ly/SeZF50YZA1Y

Are you a young person (15-25 years) with a developmental disability, parent of a child with a developmental disability (8-18 years), or professional working in pediatric rehabilitation? 🌟Join our study to help improve how we measure child engagement in therapy: https://ow.ly/J4yS50YYmmF

A recent umbrella review evaluated evidence-based interventions for children with developmental central hypotonia, including those with Down syndrome. 🔗 Read more: https://ow.ly/vcTt50YXM4w

Transitioning from pediatric to adult healthcare is a pivotal phase for adolescents and young adults with chronic conditions. This study provides a comprehensive understanding of predictors of successful healthcare transition in AYAs with chronic conditions. 🔗 Read more: https://ow.ly/W48t50YWzSj

We are excited to share that CanChild will be presenting a Two-part Virtual session on the F-Words for Child Development at the International Early Childhood Inclusion Institute hosted by the FPG Institute🌟 🔗 Click here to register: https://ow.ly/OPUI50YV6e3

This study aimed to obtain mental health profiles of caregivers of children with medical complexity (Co-CMC) during periods of adjustment and adaptation through an embedded case study during shared isolation in 2020. 🔗 Read more: https://ow.ly/PWhU50YSt5q

This publication describes a meta-aggregative review of the lived experiences of children and youth who receive school-based rehabilitation services. These insights can help support more inclusive, child-centred practices! 🔗 Read more: https://ow.ly/ohLA50YQzRx

This viewpoint argues that the global rise in childhood overweight and obesity is primarily driven by “obesogenic” food environments shaped by the commercial interests of the food and drink industry, rather than individual or parental choice. 🔗 Read more: https://ow.ly/F1uw50YOOOk

A self-paced, online F-words Foundations Course was co-developed with stakeholders, consisting of modules on the framework, lived experiences, goal-setting and applications, and evaluated through an online survey using quantitative and qualitative methods. 🔗 Read more: https://ow.ly/MLP950YOzmh

First national data from the Brazilian Cerebral Palsy Register is now available! 🇧🇷📊 Using the framework of the ICF, the study examined epidemiology, clinical characteristics, functioning, participation, and access to rehabilitation and assistive devices. 🔗 Read more: https://ow.ly/UJj750YMJ0y

Check out the recent episode on the Can We Talk?: Conversations In The Early Years Podcast! 🎧🌟 In this episode, Dr. Peter Rosenbaum and Elizabeth Chambers explore the six F‑words and how these concepts help us see and support “the whole child.” ➡️ Click here to listen: https://ow.ly/3sSL50YIUsa

This study evaluated the reliability and validity of the Dutch version of the Participation and Environment Measure for Children and Youth (PEM-CY), which assesses participation and environmental support across home, school, and community settings. 🔗 Read more: https://ow.ly/BYGA50YIclp

This article highlights the second phase of a sequential exploratory research study that identified what supports and services Canadian children living with disabilities/health conditions and their parents/caregivers need and want, now and into the future. 🔗 Read more: https://ow.ly/hky650YH5j7

This study examined the dynamic and bidirectional association between sleep quality, sleep duration, and mood in youth with CP. 🔗 Read more: https://ow.ly/z8tk50YFGX9

On April 1st, students, researchers, patient partners, and community members came together to celebrate innovation in child health, with over 500 attendees and nearly 200 research projects showcased at the McMaster Child Health Research Day 2026!🌟

This study aims at identifying and mapping the literature related to the MOVE programme and to describe its content according to preselected categories, focusing on individuals with non-ambulatory cerebral palsy. 🔗 Read more: https://www.mdpi.com/2227-9067/13/2/292

Persistent obstacles continue to limit equitable access to childcare services for children with disabilities. This study examines barriers to the accessibility of childcare services for children with disabilities aged 0 to 5  years in Canada. 🔗 Read more: https://ow.ly/qgYU50YClB3

This "What If..." Guide supports service providers in navigating challenging or sensitive situations such as family crisis, differing worldviews, or systemic barriers through compassionate, flexible strategies! 🔗 Click here to access: https://ow.ly/uVe050YBj3U

Drawing on the WHO’s International Classification of Functioning, Disability and Health (ICF), this editorial highlights a shift from earlier models of disability toward a framework that recognizes the interaction between biological, psychological, and social factors. 🔗 https://ow.ly/RTjc50YAPX2

This publication explores school-based health professionals' use of telehealth to deliver services for kindergarten to grade 12 students. 70 studies, were analyzed to identify what, where, when, why, how, and for whom telehealth services were provided. 🔗 Read more: https://ow.ly/LIGM50YzL0r

This study explored the 2-year impacts of the Family Engagement in Research (FER) Course on researchers’ and family members’ engagement in neurodevelopmental disability and child health research. ‪Family Engagement in Research Training Program‬ 🔗 Read the paper here: https://ow.ly/OKp950Yzcou

The purpose of this study is to describe the caregiver-reported frequency and type of sleep problems in children with spinal muscular atrophy (SMA) and to evaluate the sleep satisfaction of their child and their own sleep. 🔗 Read more: https://ow.ly/JpTj50YxEuE

Parents of children with EBD often struggle with their well-being. This study reviewed 13 articles on peer-led parenting programs. Findings indicate the potential for peer-led parenting interventions to have a positive impact on parent well-being. 🔗 Read more: https://ow.ly/fwBZ50YwRx6

We invite you to join an upcoming half-day virtual workshop hosted by CP-NET! 🌟 Come learn how research, community, and lived experience can help create more inclusive opportunities for physical activity 💚 🔗 Click here to register: https://canchild.mcmaster.ca/surveys/?s=E87R8EMPDLMLXYAT

The 17th Annual INRICH Workshop will gather researchers and partners in Hamilton (May 25–26, 2026) to connect local perspectives with international solutions. 🔗 Click here for registration and to learn more: https://ow.ly/7Q0v50YvhUB

The feasibility and effectiveness of a collaborative telehealth intervention were evaluated. Mean ratings for the Canadian Occupational Performance Measure and Goal Attainment Scale T-scores increased between baseline, post-intervention, and 12-week follow-up. 🔗 Read more: https://ow.ly/vXXz50YuLnl

This study explores the development of innovative knowledge translation (KT) practices within the Knowledge Translation Innovation Incubator (KTII) initiative, focusing on neurodevelopmental disabilities. 🔗 Read more: https://ow.ly/2O3p50YtyRh

The purpose of this study was to evaluate the feasibility and safety of a high-intensity physical rehabilitation programme for children and adolescents with acquired brain injury (ABI) during inpatient rehabilitation. 🔗 Read more: https://ow.ly/oFFR50Yt13R

This study aims to explore the impact of peer-support programs for autistic individuals. This review examines the impact of these programs on autistic individuals and identifies key challenges and facilitators that may influence outcomes. 🔗 Read the paper here: https://ow.ly/5lBs50YrQ2O

This article presents a critical review of standardized instruments used to assess mobility-related aspects in children and adolescents with Autism Spectrum Disorder (ASD). 🔗 Read more: https://ow.ly/aGjq50YqcWT

This study aimed to describe Canadian caregivers’ and clinicians’ language comprehension assessment experiences and needs for children with CP and SSPI prior to soliciting feedback to advance the C-BiLLT-CAN. 🔗 Read more: https://ow.ly/4ZGu50YpbIE

March is #CerebralPalsyAwarenessMonth 💚 This month lets raise awareness about cerebral palsy, its causes and symptoms, and the importance of research and support so individuals with CP can reach their full potential. Join us in raising awareness and go #Green4CP! #CPAM

This paper reports on the first two phases of a project to co-create and evaluate an “integrated” version of ENVISAGE, an online 5-week program designed for service providers and families of children with neurodevelopmental disabilities or concerns. 🔗 Read more: https://ow.ly/TuWS50YmC4N

This narrative review synthesizes evidence spanning multiple sports and gross motor function levels, where parasports demonstrate measurable benefits across all domains of the International Classification of Functioning, Disability and Health. 🔗 Read more: https://ow.ly/AO4k50YmBHa

This Viewpoint provides examples of how health professionals and systems can expand their interest beyond impairment-focused care to partner with families, adopt practices that promote children's perspectives, and create disability-inclusive environments. 🔗 Read more: https://ow.ly/umN950YmAM0

This study aims to describe autonomy levels and explore factors associated with participation autonomy in Brazilian young people with cerebral palsy. 🔗 Read more: https://ow.ly/hOHa50YhmHM

The purpose of this study was to explore the diagnostic journeys of caregivers of children with Down Syndrome diagnosed with Autism Spectrum Disorder, including identifying the challenges and needs of families, the barriers, and how ASD symptomology presents. 🔗 Read more: https://ow.ly/oalI50Yhley

The purpose of this study was to develop an updated Measure of Processes of Care assessing parent/caregiver perceptions of the family-centredness of service providers’ behaviour. 🔗 Read more: https://ow.ly/E3X350Yhm0J

To facilitate targeted interventions for parental burnout, this study sought to explore both risk and protective factors associated with burnout as perceived by parents of children with complex care needs. 🔗 Read more: https://ow.ly/LSiq50YgJU5

This scoping review aimed to identify outcomes and associated methods for evaluating interprofessional collaboration or interdisciplinary clinical training in pediatric rehabilitation. 🔗 Read more: https://ow.ly/7I5L50Yervz

This study describes current approaches to contracture management among Dutch pediatric rehabilitation physicians caring for children with SMA receiving DMT, and explores considerations and clinical reasoning that inform their decisions on contracture management Read more: https://ow.ly/sthK50Yfbwy

This multimethod process evaluation aimed to explore the implementation of a telehealth coaching intervention for parents of children with motor difficulties, involving 59 parents and four therapists. 🔗 Read more: https://ow.ly/wFPN50XWqK4

This study validates the Italian version of the Child Epilepsy Quality of Life Questionnaire (CHEQOL-25), including both the child self-report and parent-proxy versions, through a validation procedure involving 252 children with epilepsy and their parents. 🔗 Read more: https://ow.ly/fsNR50XWquS

The first six cohorts of the FER Course (2018–2021) were part of a pre-post evaluation to assess learners’ perceptions and satisfaction of the FER Course, and the impact on their perceived knowledge, abilities, attitudes, and self-confidence in FER. 🔗 Read more: https://ow.ly/nLMQ50XWqmN