🧬 Living with an immunodeficiency means that every day infections can become life-threatening. At Immunodeficiency UK, we offer support, information, and advocacy for people facing these invisible conditions. 1/4

It’s #SmallCharityWeek! We may be small, but our mission is mighty: supporting people living with primary and secondary immunodeficiencies across the UK. This week, we’re celebrating how we are making a BIG difference despite only being staffed by 1 full-time and 1 part-time staff member.

The NHS is facing a critical blood shortage. Stocks remain low, with a pressing need for 200,000 new donors—especially those with O negative blood, which can be used for most patients. Sign up to donate: blood.co.uk Full story via BBC: www.bbc.co.uk/news/article...

Are you living with an immunodeficiency, or do you know someone who is? Join the Immunodeficiency UK community today and gain access to resources, support, and vital information on managing your condition. #ImmunodeficiencyUK #CommunitySupport www.immunodeficiencyuk.org/our-charity/...

The immune system is a complex organisation of cells acting together to protect us from infections. But, ageing can affect the body's ability to protect effectively against infection. So, we've put together a guide that covers how ageing affects us www.immunodeficiencyuk.org/wp-content/u...

Please remember to use #easyfundraising EVERY time you shop online. Over 7,000 brands will donate to Immunodeficiency UK for FREE when you use #easyfundraising to shop with them, so you can support us no matter what you’re buying!

At Immunodeficiency UK, we have long championed newborn screening for severe combined immunodeficiency (SCID)—a life-threatening but treatable condition when detected early. Now, over 1 million babies have been screened as part of the NHS in-service evaluation (ISE), marking a major milestone! 1/4

Get involved and have your say! The Rare Disease Quality Statement Project is asking the rare disease community to complete their survey to help finalise a set of statements that define what high-quality, sustainable care, treatment, and management should look like for rare diseases. 1/2

🚨 10 DAYS TO GO! Time is running out to join #QuitItForImmunodeficiency! • Support 500,000+ people • Join an amazing community • Make a real difference Don't miss out! buff.ly/3EiNSqz

Are you an Immunodeficiency UK member yet? It is completely free to sign up and only takes a few minutes. By becoming a member, you will receive regular updates on our activities. www.immunodeficiencyuk.org/our-charity/...

Living with an immunodeficiency means taking extra precautions. Check out our resources for keeping well when you have an immunodeficiency www.immunodeficiencyuk.org/supporting-y...

Lucie, a professional figure skater, faced a life-changing diagnosis of blood cancer at 27. Her subsequent chemotherapy, while successful against cancer, resulted in secondary immunodeficiency. Read Lucie's story and learn more about SID.

⏰ 20 DAYS TO GO! Many of our supporters have signed up for #QuitItForImmunodeficiency—will you join them? Whether it's chocolate, coffee, or social media, your 30-day challenge can transform lives. buff.ly/3EiNSqz

Life-changing plasma medicine made from UK blood and plasma donors is now being used to treat people with immunodeficiencies and other illnesses. Since February 2021, the NHS worked towards this huge milestone after the Government’s green light to restart UK plasma medicine production. 1/2

Making history! After more than 25 years, plasma medicines made from UK donors are being used to save lives. Plasma contains antibodies that strengthen or stabilise the immune system, and over 8,000 people with primary and secondary immunodeficiency rely on immunoglobulin therapy, 1/4

🎯 30 DAYS TO GO! The #QuitItForImmunodeficiency challenge starts April 1st! • Choose your challenge • Set up your fundraising page • Change lives What will YOU quit for 30 days? buff.ly/3EiNSqz

Charlie was the first UK baby diagnosed with SCID through the pilot newborn screening programme. Now he's a happy, healthy preschooler who loves singing and making friends. This is what early diagnosis can do. #RareDiseaseDay #NewbornScreeningSavesLives buff.ly/42iPDyd

Two brothers, two different outcomes. Rebecca lost her first son Scott to SCID before screening was available. Her second son Rhys was tested at birth, diagnosed early, and is now thriving in school. Early diagnosis saves lives. Read Rebecca’s story at buff.ly/4aqA21o #RareDi#RareDiseaseDay

If you met Charlie today, you'd have no idea of the turbulent start he had to life. Thanks to the newborn screening for SCID pilot, he was diagnosed at just 5 days old and received life-saving treatment. Every baby deserves this chance. Read Charlie’s story at buff.ly/42iPDyd

This #RareDiseaseDay, we're highlighting why newborn screening for Severe Combined Immunodeficiency (SCID) is crucial. Early diagnosis means: • Treatment can begin before infections take hold • Better transplant outcomes • More lives saved

🤝 Everything's better with friends! Create your # QuitItForImmunodeficiency team and: • Support each other • Share your journey • Make memories • Change lives Tag your squad below! 👇 buff.ly/3EiNSqz

🌟 TOMORROW is Rare Disease Day 2025! 🌐 The day we've been waiting for is almost here! Tomorrow, join us in raising our voices, spreading awareness, and standing in solidarity with those affected by immunodeficiency. Let's make Rare Disease Day 2025 unforgettable! 💙🦋 #RareDiseaseDay

This Rare Disease Day, we're shining a light on Severe Combined Immunodeficiency (SCID) and the critical need for newborn screening across the UK! 🔬👶 Early diagnosis of SCID can be life-saving. Yet currently, not every newborn is screened for this rare but serious condition at birth.

🏢 Looking for a team-building activity with purpose? Get your workplace involved in # QuitItForImmunodeficiency! • Bond with colleagues • Support a great cause • Make a real difference Tag your workplace below! 👇 https://buff.ly/3EiNSqz

"📅 Countdown to Rare Disease Day 2025: 7 Days to Go! 🦓 As we approach Rare Disease Day, let's shine a spotlight on the strength and resilience of those facing immunodeficiency. Together, we can raise awareness and make a difference. Stay tuned for stories that inspire, educate, and unite! 💙🌐

Our resource library contains over 70 downloadable guides that cover a wide range of topics for people living with immunodeficiency. We are always updating the library and creating new guides to make it as useful as possible for the immunodeficiency community. https://buff.ly/3ZXWjiu

What your fundraising provides: • Mental health support programs • Hardship grants for treatment travel • Educational resources for families 30 days of your commitment = years of support for others Join # QuitItForImmunodeficiency today! https://buff.ly/3EiNSqz

Understanding targeted therapies can be complex, but knowledge is power. IPOPI's guide breaks down the latest treatment options for Primary Immunodeficiencies (PIDs Visit https://buff.ly/3E4NFr2 to access your copy.

People with PID rely on a range of different treatments being available. These include immunoglobulin therapy and stem cell transplants (BMT). Find out more about treatment options for those living with a primary immunodeficiency here: https://buff.ly/4jrpWRW

Want to find out more about what we do? Discover information about our mission, our people and our values right here. https://buff.ly/3FKH9EC

Your #QuitItForImmunodeficiency challenge makes a real difference: • 500k+ people in the UK have an impaired immune system • 260+ people supported through our helpline last year • 4.2k+ information booklets sent to centres and individuals Will YOU help us do more? https://buff.ly/3EiNSqz

💪 Show your support for the immunodeficiency community while you work out in our comfortable, breathable t-shirts. Every purchase helps us support families affected by immunodeficiency across the UK. Look good, feel good, do good! Shop now at https://buff.ly/3PjO0bH

Understanding Primary Immunodeficiencies (PIDs) is crucial for early diagnosis and patient care. This guide provides essential information about: Key warning signs of PIDs in children and adults When to suspect and how to identify PIDs Download our free GP guide at https://buff.ly/3WtDv9T

Will you consider making a monthly donation to support our work? By supporting Immunodeficiency UK, you are playing a key role in our mission: to support and represent people affected by immunodeficiencies. You can donate as little or as much as you'd like. https://buff.ly/4h4ogMM

Become a member of Immunodeficiency UK today. It is free to join and by becoming a member, you will receive regular updates on our activities. Click the link below: https://buff.ly/4g6VNER

World PI Week is coming at the end of April! As part of a global effort to raise awareness of the impact of having a PI, please support @ipopi.bsky.social campaign "See the unseen: Unite to uncover the true stories behind Primary Immunodeficiencies" Find out more at ipopi.org/world-pi-wee...

HUGE Thank you to everyone who has donated or fundraised for us recently. As a small charity that receives no public funding, your support is invaluable and your donations are helping us be there for everyone who needs us. We couldn't do it without you.

Living with an immunodeficiency means taking extra precautions. Check out our resources for keeping well when you have an immunodeficiency https://buff.ly/3CkXSPB

Are you or a loved one living with a primary immunodeficiency (PID)? Understanding how to prevent and manage infections is crucial. Download this essential guide to help you stay informed and healthy while managing your PID. The booklet is free and available now at https://buff.ly/3E3JM5K

Booking a short getaway or holiday? All of the major travel brands are on #easyfundraising! The average family holiday could raise over £110 for Immunodeficiency UK!—and it’s all completely FREE! So please remember to use easyfundraising when you book so we don’t miss out! https://buff.ly/3qcOI1q

Want to find out more about immunodeficiency and hear about how other patients have navigated it? Our patient stories page on the website has people with immunodeficiency sharing their experiences, and it covers a wide range of different immunodeficiencies. Find it here: https://buff.ly/41YVU1Y

When people with a primary or secondary immunodeficiency have an infection, it can make them more susceptible to developing long-term problems with their lungs. We've created a resource that provides helpful information for the immunodeficiency community. https://buff.ly/3BQf4MK

We have an extensive list of resources for patients, carers, and professionals. Our free leaflets cover a range of topics, including taking control of your healthcare, guidance for carers, lifestyle advice, FAQs and much more. Click the link to see what we have to offer. https://buff.ly/3ZXWjiu

We rely on your support to enable us to be there for people living with immunodeficiency. Do you want to fundraise for us but have no idea where to start? We've put together a fundraising supporters pack to help you meet your fundraising goals. Download it here https://buff.ly/4gYvNvY

Are you ready to make a real difference in the lives of those with immunodeficiency? 💙 Take action and fundraise for Immunodeficiency UK! For ideas and help to get started, visit: https://buff.ly/4g99S4q #ImmunodeficiencyUK #FundraiserForGood #MakeADifference #BeAHero

Being a young person with a primary immunodeficiency has its own set of unique challenges. So, we've created a list of resources for young people and their parents. These resources cover some of the most frequently asked questions that young people with PIDs may have https://buff.ly/4iWYlIe

It is important to know your employment rights as a person living with an immunodeficiency. To help you fully understand your rights, we have created a leaflet that covers this and more. Download it here: https://buff.ly/3W3takH

Considering booking a holiday and you or a loved one are living with immunodeficiency? We have created a leaflet that gives information about things to consider for individuals and families affected by primary or secondary immunodeficiency (PID or SID). Download it here https://buff.ly/4fKaaPb

Has your child just been diagnosed with an immunodeficiency? We have a section on our website that aims to cover many of the questions that parents of a newly diagnosed child might have. You can find it here https://buff.ly/4fXJavT

Staying well and as healthy as possible is especially important if you are living with an immunodeficiency. So, we've put together a leaflet that provides a wealth of tips and advice to help you stay as well as possible. Download it here https://buff.ly/4iRNrU2