Natalie Banner (@nataliebanner.bsky.social)

Brilliant to see this article out about the detailed, thoughtful process of designing and co-creating a consent process for our #newbornscreening #genomics research study @genomicsengland.bsky.social tl;dr it's about much more than a consent form! karger.com/phg/article/...

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Co-Creating the Experience of Consent for Newborn Genome Sequencing: The Generation Study Abstract. Introduction: The Generation Study (GS) aims to recruit 100,000 newborns in England to evaluate the utility and feasibility of using whole genome sequencing to screen for rare conditions tha... https://karger.com/phg/article/27/1/210/914746/Co-Creating-the-Experience-of-Consent-for-Newborn